14th Jan2005

What now?

by Dutchcloggie

We don’t know. JD might end up an epileptic for the rest of her life with Post Traumatic Epilepsy. Or the knock might simply have exposed a previous condition that leads to having seizures. Or it might be a one-off. They don’t know and they can not tell. That is the most frustrating bit. You just don’t know. It can happen again at any time. Or not at all. And in the mean time you have to adjust your life: don’t lock the door when going to the toilet, in case you have a fit. Always have a phone next to your bed in case of a fit. Always wear a bracelet with instructions for people if you have a fit. No driving for a year. No sport, no more rugby. Take it easy at University…

Take it easy? This is her final year. She wants to go to London for her Masters but that will depend on her grades. Will they be good enough? Or not? How will this impact on her future? I don’t give a rat’s arse about what it means for me although I am already aware that I need to be careful and not smother her by telling her not to do anything.

Taking it easy is not the same as not doing anything at all.
It is important not to treat her like a patient but it will be hard for her.

But it will not stop her playing rugby apparently. If she can no longer play the game, she will be involved on training. Our coach, bless him, has already asked her if she was interested in helping him with training sessions. Good. I would hate for her to loose that too.

I am sad. And worried. For her. She is only 21. I know epilepsy is not a death sentence but it is pretty shit none the less.

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