JD is getting a steady stream of visitors. There are people here almost every day. It is nice, I think, for JD but it also breaks my day a bit.
JD is now really speaking only a handful of words every day. If we are lucky, she might just respond a with a Yes to a few questions but that is it. I am however working on the assumption that she can hear and understand everything. So I read to her, watched the DVD of Green Wing and have visitors sit and chat around the bed as normal.
My big worry is that she is able to understand everything but unable to communicate. A bit like locked-in syndrome. That would be terrible for her. I just guess how she is feeling and hope I do the right thing.
Even if her cognitive functions are deteriorating, physically, she seems fine. Her appetite is good, she sleeps well, her breathing is strong. I guess that as long as the tumour does not interfere with the brainstem and vital body functions, she could be like this for a long time. This cruel disease does not always progress in neat stages. With JD it seems to be more short, steep decline and then a period of calm where it is relatively stable. So perhaps we have just had the period of steep decline and are now entering a long period of calm. No idea. But last week I had the feeling she would not be long for this world, but this week I am feeling much more confident that there is still some time left for us to spend together.
Now I just need to think of things to do with JD.