13th Sep2009

She’s shrinking! (But not the tumour)

by Dutchcloggie

Oh no! Someone come to my rescue. My wife is vanishing before my eyes! Since she has stopped taking steroids, there has been less and less of JD but in the past few days, things have really taken on a new degree of speed. Weight is now flying off. Yay. So much so that we went to H&M yesterday and bought a nice pair of jeans. After about 6 months in baggy trousers with elasticated waistbands, JD can wear a pair of jeans again and feel ‘normal’. I am sooooo proud of her. She looks lovely and thin in the jeans. And it makes her feel better as well.

The irony in this is that she looks better and better and people are commenting on how good she looks and yet, she is in actual fact not getting better at all!

This week sees the second round of chemotherapy. Officially the course of Temozolomide is planned for 6 months, then a scan and then perhaps more chemotherapy. I asked the doctor what would happen if the scan shows the tumour has stopped growing after 6 months’ of chemo. His answer was that JD would then continue to take the Temozolomide. So as long as the tumour does not grow further, she will keep doing monthly cycles. He said: I have patients who are doing really well and are already on their 38th cycle of chemotherapy.

When I think about the deeper implications of what he said there, I don’t like that at all. So 3 years of monthly chemo and still alive is considered ‘really well’.

Don’t get me wrong, we are positive and will just continue to do the things we do as much as possible: play tennis, JD continues her PhD and stuff. But the fact that the tumour is not giving her any problems at all and yet it is apparently so dangerous that it requires the severely aggressive treatment is hard to take sometimes.

09th Jul2009

We’re going on a holiday

by Dutchcloggie

Not yet unfortunately but in August! Yay! 2 weeks away to France. My sister is hoping to give birth to kiddie No2 then as well so once we are on the mainland, we can just drive on to Holland if she is kind enough to deliver whilst we are in Europe.

Other than that, the plan is to go camping in Brittany and cycle parts of the Nantes – Brest Canal. That is a nice and flat route to keep AB happy, and nice and cycling to keep me happy. We have ordered a nice book from Amazon about the canal and a map of Brittany so we are all set. Now all we need to do is decide where along the canal we will set up camp. We won’t cycle the whole thing but just day trips here and there. I am BEYOND excited.

In other news, JD and I have gone back to the gym for the first time since the end of the radiotherapy and I am SO proud of JD. She was focused, put effort in, sweated loads and even signed up for a 6-week fitness plan specially put together for her. Last time we went to the gym, she was unable to concentrate for more than 2 minutes, kept stopping and did not sweat at all since she put no effort in: lost concentration before she even got going.

All these little things make me feel really positive about the future: she’s really getting better. Yay. Bring on the holiday!

15th May2009

More hair!

by Dutchcloggie


Look at that! A lovely head of hair. It is growing back nicely. Far too slow for my liking as I am really excited about it and I want to see what it will look like when it has grown back fully!

I love stroking her head and the new fluffy hair. Radiotherapy can kiss my butt!